Comments on: Home

By: Varda Burstyn

Varda Burstyn — Sat, 31 Dec 2011 04:40:41 +0000

Hi Mark. Thanks for your kind words on the site. We hope to do much more with it in the coming year. As to your question: yes, a genetic test. It’s only been in the last five years or so that the genetic anomalies responsible for MCS have been coming to light. We had the test done in Dallas at the Environmental Health Center (http://www.ehcd.com/). Not only did treatment there save Varda’s life, we learned a lot which helped us get the health care at home that we needed. Not that we’re really getting it… but that’s another story. Bottom line for you: if you can’t get to EHCD, try to find an integrative physician in your area who will get the appropriate tests done for you. Check out MCS America (http://www.mcs-america.org/) and their “doctor list” for physicians in your area.

By: Mark

Mark — Fri, 23 Dec 2011 15:48:45 +0000

Kick-Ass site !!!

But I do have a question, you said:

“genetic/epigenetic predispositions (for example, I have those pesky polymorphisms of the Cytochrome P450 system and the conjugation systems, so my body doesn’t detoxify chemicals on its own, which predisposes me to MCS)”

The question being… how does one determine if this is their problem… I’m assuming there is some type of test… genetic test?

This would be valuable information so I’m hoping you can direct me in the right direction.

Thanks again for a great site
Mark

By: Bill Stenwick

Bill Stenwick — Fri, 30 Sep 2011 23:58:01 +0000

I just found this site today. What a great site ! My wife has MCS and I have been doing a lot of research on it and lately on the genetic aspects and I was on google drilling down and found many very informative articles from this site. Anyway, I will be a frequent visitor.

Bill

By: Libby

Libby — Mon, 25 Jul 2011 14:17:45 +0000

Thank you so much for this blog. It’s so full of useful information!
I’m very glad to see that you now offer consultations.
I’m in the process of recovering from MCS (slow but steady) and had met you years ago at Larry Steel’s office. I hope that you are doing well :-)

By: Janet Wright

Janet Wright — Wed, 17 Nov 2010 15:43:56 +0000

Hello! As an EHAO member and a long term suffer of MCS I am glad to read your blog. My journey has been difficult both mentally and physically. I am 61 and have been suffering since I was a child. I can only say how glad I am to finally see the light and have a name to my illness. Knowledge and action is the only way forward. Many times I have felt alone and discouraged but never once did I not know that somehow somewhere I would find help and hope. Now we have so many resources and at least a few MD’s who are now aware and practicing to help us who have this illness. We must all be crusaders of our cause. Even if it is only one person at a time. I am always surprised to hear others comment on how they themselves have some of the symptoms of MCS.

By: Kirby Fairfax

Kirby Fairfax — Fri, 11 Jun 2010 05:43:46 +0000

RIGHT ON!!

After almost of a decade of living on the edge due to a severe allergy to chemicals, I’m thrilled to see more people fighting back by trying to educate the public about this bizarre ailment.

Bless you for making a difference!

By: suwa

suwa — Thu, 19 Nov 2009 07:44:18 +0000

Thank You, For Share This.

By: Marc Shaw

Marc Shaw — Thu, 15 Oct 2009 19:39:08 +0000

Hey, I read a lot of blogs on a daily basis and for the most part, people lack substance but, I just wanted to make a quick comment to say GREAT blog!…..I”ll be checking in on a regularly now….Keep up the good work! :)

- Marc Shaw

By: varda burstyn

varda burstyn — Thu, 01 Oct 2009 19:25:09 +0000

thanks so much for this wonderful link — which I will include on this site. It’s an important tool for parents, and an amazing educational device for anyone who visits the site.

thanks for sending it to The Chemical Edge

By: Mike Meuser

Mike Meuser — Wed, 23 Sep 2009 21:37:28 +0000

These interactive maps of toxic pollution and schools should be of interest:

Toxic Chemical Pollution, Children and Schools in the U.S.

http://www.mapcruzin.com/toxicrisk/index.htm

ToxicRisk.com is a Google Maps based mashup project that uses the latest EPA Toxic Release Inventory (TRI) data, released March 19,2009, and schools in the U.S. Links are provided to RTK Net for detailed chemical pollution release data and Scorecard for chemical information.

As you zoom in you will see a change in the icons of the facilities near the center of the map – these are the ones that you can click on and find the facility name, number of schools within 1 mile and number of schools within 5 miles of the facility plus a link to a database about the toxic history of the facility. You can also click on a chemical to learn more about associated risks. The schools will appear as you zoom in. As you zoom in further, you will see the school icon change – at that point you can click on the school to view its name. Click here for a graphical mini-tutorial. If you have any questions, suggestions or comments, please email me. I’d love to hear from you.

Michael Meuser and Aran Deltac, co-developers of ToxicRisk.com, have been doing interactive pollution mapping since the early 1990s. Their Santa Cruz Toxic Release Inventory was the first U.S. based interactive toxic chemical facility mapping project on the internet. It was son followed with their work on the mapping interface for the launch of Environmental Defense Fund’s Scorecard Project.

Michael works fulltime developing content for http://www.MapCruzin.com and doing Community GIS projects. Aran is programming team leader for a major internet development company.