Comments for THE CHEMICAL EDGE http://thechemicaledge.com Everyday Chemicals and our Fragile Health Wed, 14 Mar 2012 18:22:16 +0000 hourly 1 http://wordpress.com/ Comment on – MCS: The New Homeless by Carla S., NM but it's not good for me. http://thechemicaledge.com/section-2-the-song-of-the-canary-mcs/mcs-the-new-homeless/#comment-4424 Wed, 14 Mar 2012 18:22:16 +0000 http://thechemicaledge.wordpress.com/?page_id=18#comment-4424 THANK YOU FOR THIS POST – AT LEAST WE ARE NOT ALONE, THOSE OF US Dispossessed.
Quiet desperation – my New Normal after being sick for 25 years then sustaining a stroke because of it.
No one understands except those of us who have been thru it. Never have understood, never will, until they are also . . . dispossessed.

]]> Comment on – MCS: The New Homeless by Varda Burstyn http://thechemicaledge.com/section-2-the-song-of-the-canary-mcs/mcs-the-new-homeless/#comment-3795 Sat, 31 Dec 2011 04:54:07 +0000 http://thechemicaledge.wordpress.com/?page_id=18#comment-3795 Hello Clement. Good to hear from you, sorry to hear of the damage caused to you by mold. Happened to us, too. As to doctors, here’s the best list we can give you:
http://www.mcscanadian.org/medical/ontario.html
Unfortunately, you’ll have to go to either the Toronto area or to Ottawa. No help in the greater Peterborough area. Probably the most comprehensive doctor for you is Jennifer Armstrong, in Ottawa. Unfortunately she has a long waiting list (of course – because too few doctors do this work), but get on her list. While you’re waiting for Dr. Armstrong, consider checking out Dr. Gannage in Markham. He is good, and his office offers IVs, but he’s not an MCS specialist. Still, he knows a lot and has been good to work with while waiting to see Dr. Armstrong.

]]> Comment on Home by Varda Burstyn http://thechemicaledge.com/#comment-3794 Sat, 31 Dec 2011 04:40:41 +0000 #comment-3794 Hi Mark. Thanks for your kind words on the site. We hope to do much more with it in the coming year. As to your question: yes, a genetic test. It’s only been in the last five years or so that the genetic anomalies responsible for MCS have been coming to light. We had the test done in Dallas at the Environmental Health Center (http://www.ehcd.com/). Not only did treatment there save Varda’s life, we learned a lot which helped us get the health care at home that we needed. Not that we’re really getting it… but that’s another story. Bottom line for you: if you can’t get to EHCD, try to find an integrative physician in your area who will get the appropriate tests done for you. Check out MCS America (http://www.mcs-america.org/) and their “doctor list” for physicians in your area.

]]> Comment on – MCS: The New Homeless by Clem http://thechemicaledge.com/section-2-the-song-of-the-canary-mcs/mcs-the-new-homeless/#comment-3781 Fri, 30 Dec 2011 15:57:55 +0000 http://thechemicaledge.wordpress.com/?page_id=18#comment-3781 Hi, Iam happy to have found you website: the most complete so far.Thanks for the good work. After a massive mold exposure in 2005, I ended up with sever MCS.In 101 part 7, i saw that the writer (you?) is now in Peterbrough. I moved to Campbellford (1 hr away) in May 2011. Do you know of a doctor that can treat MCS? Thanks again.
Clement E. Pilon

]]> Comment on Home by Mark http://thechemicaledge.com/#comment-3675 Fri, 23 Dec 2011 15:48:45 +0000 #comment-3675 Kick-Ass site !!!

But I do have a question, you said:

“genetic/epigenetic predispositions (for example, I have those pesky polymorphisms of the Cytochrome P450 system and the conjugation systems, so my body doesn’t detoxify chemicals on its own, which predisposes me to MCS)”

The question being… how does one determine if this is their problem… I’m assuming there is some type of test… genetic test?

This would be valuable information so I’m hoping you can direct me in the right direction.

Thanks again for a great site
Mark

]]> Comment on – MCS: The New Homeless by Varda Burstyn http://thechemicaledge.com/section-2-the-song-of-the-canary-mcs/mcs-the-new-homeless/#comment-3053 Sat, 19 Nov 2011 03:34:01 +0000 http://thechemicaledge.wordpress.com/?page_id=18#comment-3053 You are right – which makes it critical that we all do whatever we can to make change happen. If enough of us do, it can happen. Yes, the “old guard” is pretty much in control of standard medicine in many places, and the chemical industry continues to pour millions into PR campaigns against the idea that chemicals could be causing health problems (duh) – but there are bright spots. There are integrative physicians who have kept up with the science, and who know how to treat people with MCS/EI or CFS/ME. There are centers of excellence for treatment of MCS in Japan, Germany, Sweden, Nova Scotia… and Dallas, Texas, as well as other places. So do not give up hope. If we fight on together, we will win in the end – because the science is with us, and there are an increasing number of children with chemically-related problems, which is getting their parents involved in the struggle. So our allies are growing. Sadly, perhaps… but if it helps deal with the problem, a good thing in the end.

]]> Comment on – MCS: The New Homeless by dgui http://thechemicaledge.com/section-2-the-song-of-the-canary-mcs/mcs-the-new-homeless/#comment-3049 Sat, 19 Nov 2011 01:22:49 +0000 http://thechemicaledge.wordpress.com/?page_id=18#comment-3049 I have a sad miserable story too but whats the point? This world will not change unless it is forced to.

]]> Comment on – MCS: The New Homeless by liz http://thechemicaledge.com/section-2-the-song-of-the-canary-mcs/mcs-the-new-homeless/#comment-2656 Mon, 31 Oct 2011 03:05:55 +0000 http://thechemicaledge.wordpress.com/?page_id=18#comment-2656 PLEASE HELP MCS AND LIVING IN TOXIC BLDG

I too have been diag w/mcs. i think there is a correlation to living near the world trade center up till 06 as certain things i.e.: oil paints,
turpentine, and hair dye would progressively bother me .

reently i have been toldi am allergic to mold. NOW LIVING IN A TOXIC APT AND there is a train line in the backyard. it is making me sicker every day. it took me 2 days to pack a xml backpack to see a dear friend in nyc upon seeing me she said i looked grey, sullen, etc, and i felt much better after being here, even after 2 days s he said i looked normal.

don’t have much money to move. i am loosing my mind. each day is worse for me. i can’t think. at home my eyes are stinging dripping oozing crusty and blurry.

i don’t know where to turn to look for ad’s for people seeking rookie w/same.

i was never allergic to mold before. the landlord won’t do anything.
i am in nj. 24 hrs fr nyc. i don’t know where to go. what to look for. patch test showed allergic to formaldehyde black rubber tar and p-phenyelendaimine.

i don’t even know what to sleep on. i had a memory foam topper, and threw it out. n ow my fake tempurpedic which came wrapped up small and expanded i’m sure i am allergic to it also. excuse my writing, i am tired and scared. i need to move asap and have a back injury which compounds the situation. herniated several discs
in my back a nd neck. ongoing lawsuit.

don’t know many people where i live and feel stuck.
if anyone can help me pls email me and let me know where you found my post. met.at.moma@gmail.comi don’t have a computer, use the library’s one.

thanks for all the posts. and information.

ld

]]> Comment on Consult Varda Burstyn by Varda Burstyn http://thechemicaledge.com/consult-varda-burstyn/#comment-2301 Wed, 05 Oct 2011 00:14:29 +0000 http://thechemicaledge.com/?page_id=825#comment-2301 Hi Bill. Thanks for your kind words. And yes, we have thought about making our site more interactive, and still hope to, but so far time and health needs have been prohibitive. I’m sure you understand, and so would Susie since we see that she’s putting the Canary Report on a 6-12 month hiatus so she can work on her own health. We wish her the best, and we’ll see what we can do to pick up the slack. In the meantime if you have specific suggestions regarding what types of interactivity you’d like to see, please do let us know.

All the best…

]]> Comment on Consult Varda Burstyn by Bill Stenwick http://thechemicaledge.com/consult-varda-burstyn/#comment-2300 Tue, 04 Oct 2011 23:15:38 +0000 http://thechemicaledge.com/?page_id=825#comment-2300 Hi Varda,

I just found your website yesterday and like it but it is not so interactive as the Canary Report which I usually follow. Have you ever considered changing the site to something more interactive as a tool for Canaries to exchange ideas, information and questions?
Bill

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