– MCS 101.7: Treatment

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6 comments

i need ans. i recently had heart attack and now need to use blood thinners and all the blood thinners make me break out with hives and tightness in the chest. anyone with any ans. please help me as i suffer with mcs. thank you brenda
by BrendaPatterson December 28, 2009 at 00:06

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I have a family member who has suffered with this for many years. Although I tried to understand it, it was hard to comprehend all the difficulties it was causing. Your article has made it much more clear and and paints a powerful picture of the physical, emotional and mental pain this illness imposes. Thankyou.
by Martha Henniger September 15, 2010 at 01:17

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What a wonderfully comprehensive body of meaningfully helpful information for people of varying degrees of MCS. Thank you for organizing it the way you have and for posting it for us to view. I hope and trust that you will have good enough health and energy to continue this invaluable work. I also hope that as many people as possible (patients, family members, friends, family physicians, ER physicians, nurses everywhere, and other allied health service members) also find their way to this website because it is extremely factually accurate in an appropriately detailed manner. Bless you for your contribution to this severe and rapidly growing medical problem !
by Rochelle February 6, 2011 at 19:49

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when I tried to find out anything on this illness way back in the early 70s there was nothing out there not even in the library, no doctor would talk to me about it and I was given pills for this and that.. when I kept telling them that I was well until being near polishes , cleaners and perfumes .. as time passed and the years past it has got worse.. When it started I was 17 and worked in a printing factory.. at the same time I took a growth in my eye that no one seemed to understand.. I got drops that didnt work and only made it sting.. so I gave up and never told the doctors again…. Over the years though I have mentioned to my GP and some other doctors in hospital and not one would listen I even got the stare and the glance to other doctors.. I insisted on blood and patch tests which were done in 1990 the patches made me ill instantly and all I was told was that I was allergic to some foods ,perfumes etc… nothing I didnt know.. but when I asked what they intended to do I got a sheet of Do s and Donts… again all I already knew.. and no help or follow up on the condition so I got a computer a few years later and began writing to different bodies like Allergy UK and the AAA Action against allergies.. and some others… only the AAA gave me a definite answer and a lovely three page letter from Aeronwy Thomas an allergy sufferer back then. who was the daughter of Dylan Thomas . a lovely caring woman… She died not long ago…. After this Allergy UK took an interest with what I had told them over the phone.. and now have an MCS unit set up at their offices….. I remember writing to Clare Rayner who was their patron at one time.. and telling her of the situation.. She replied telling me to get hypnotism.. her letter went in the bin… I was then approached by a Scottish newspaper to do a three page spread for Allergy UK which I agreed to do.. telling them exactly the symptoms and what set it off with photographs.. I thought it might have a turning point for doctors to learn more or for one to come forward and offer to help as at that time I thought I was the only person with this.. I also thought I had something wrong in my brain causing it.. well you would when no one believes your symptoms and no doctor will even admit to knowing about the conditions.. I then was approached by Womans Own for my story and did that too.. but still no joy after it was published.. Ive carried on trying to find answers and found a site online mcs-global.org where a lovely lady Diana Buckland works tirelessly to try and get recognition for the illness.. Ive been one of her coordinators for three years now. and a support contact for Allergy UK on the phone to try and help others.. but its so difficult when i cant help myself..
by Irene Robertson March 15, 2011 at 16:56

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I also contacted Margaret Marquis de Mar at the House of Commons as she has MCS too. with working on her farm years ago with sheep dip.. She wrote a lovely letter back to me but I havent heard from her in a long time.. I also contacted Prince Charles on a few occassions who was sympathetic about the illness and referred me to a hospital in London for alternative illnesses but when i contacted them the said they didnt deal in chemicals and couldnt help either.. but at last Charles tried to help.. he also gave a speech in Canada a few years ago.. and spoke about environmental illness… I was told by a friend who lives there at the time.. I wrote to Cherie Blair. then Tony Blair who sent my letter to the Scottish Executive as I live here… and got a four page letter from the Executive who explained that theyve known of MCS for some time now but have no plans to open clinics for such illnesses.. that really was a bit of a joke actually admitting they know of it then the bad news … what are they all about.. Im beginning to think theres a real conspiracy against this illness and its being hidden in case it causes panic or too many coming forward with symptoms or is it making them too much money and they dont want to lose the profits from the junk sold over the counter in shops… I want to laugh when I see cartons of cigarettes with warnings.. another money spinner for them that they knew were dangerous over 50 years ago but did nothing.. their false even now.. its only because of the NHS is so stretched with cigarette induced illnesses that something is being done… they dont care.. I wonder when a bottle of Chanel or air fresheners will carry the same warning….. Perfumes can seriously damage your health….
by Irene Robertson March 15, 2011 at 17:05

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This is a great article, thank you for this because it helps me to know that I’ve been suffering from this for years… I could never understand my bouts of depression and such, but NOW I understand it thoroughly!
by Faith August 5, 2011 at 22:37

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– MCS 101.7: Treatment

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